Wednesday, September 26, 2012

The Mirena Disaster

WARNING: This post contains graphic descriptions about blood loss and may offend some people. Do not read it if you are easily offended. I have chosen to write about my experience because no-one warned me about what might happen and I've had many questions about the Mirena and frankly, it's my blog and I can write about whatever I want. I don't really see the point of blogging unless you write about things others will not. This might help someone. If might even help me.
Twelve days ago I had my contraceptive device removed. I expected some bleeding after its removal. I expected a "heavy period" as my Doctor so kindly forewarned me.

I was wrong and she was wrong.

Instead, I am now on Day 10 of the most horrendous blood loss I have ever experienced. Blood clots the size of golf balls have become a regular occurrence. It is so violent I have found myself in supermarket queues with blood soaked pants wishing for the ground to swallow me up. Gushes of blood have become so normal I have started not leaving the house for longer than half an hour blocks, too nervous of a repeat performance. Today, alone, I have changed my tampon and accompanying maxi pad five times in  five hours. And this is Day 10. There are no signs of this abating.

And I count myself lucky. I work from home, which helps, and I have a supportive husband who can step in when I need to rush to the toilet, again and again. What about the women who do not have a support network? What about the women who have to stand for long hours for their job? The ones who have to take public transport to and from work, who sit there squirming in their seat? What about the ones who can't be seen rushing to the toilet every hour, pay docked, questions asked?

What disturbs me most is that I can not get any solid explanations about my body's response to the Mirena's removal. And I'm a journalist for fucks sake. Is this blood loss normal? Will it stop soon? Is there anything I can do to make it possible to leave the house? Why was I not not pre-warned about this?

I went to a different Doctor yesterday and asked her what she thought. She too had no answers. I have a strong suspicion that no-one really does. And they should know. What they do know is that for the most part this "revolutionary" IUD can stop periods for many women and according to "research" it is "simply the best" contraceptive device ever. A term I've heard many times. A term I beg to differ on.

For me, it's been a disaster. For me, it's taken six, now edging to seven months of my life away. It's caused me to stack on 12 kilos. It's caused pimple outbreaks, akin to being a teenage boy. It's caused a roller caster of emotions and huge mood swings. Heart palpitations. Anxiety. Bloating. You name it.

Since its removal, my whole demeanour has changed. Instantly, I felt a weight lifted. Instantly, I felt happier, less anxious. The heart palpitations stopped. I stopped craving food with such ferocity. I've even lost a kilo. It was instant, how much better I felt. I walked lighter. I'd taken back control of my body, but then the bleeding started.

I just want it to stop. I've had heavy periods my whole life. I know what it's like to sleep on a towel in bed and have nausea knock me out, but this is different. I've had days of heavy blood loss, not weeks. I am so drained.

In my personal experience, the Mirena has been a complete disaster from start to finish. For others, it's been life changing. I just wish there was more information out there for the people whose bodies do not react positively. For people like me. Why isn't there?

Has this happened to anybody else? Have you ever had to do the "blood shuffle" in a public place?

bigwords x


Thanks so much for your comments. I really love that you're taking the time to tell me what you think x

40 comments:

  1. Mate, these things are evil. I bled like that when the bloody thing was in me. Like you, no one could tell me why it was having that affect on me. My cycle has never been the same since having it removed a couple of years ago either.

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  2. Deb_BrightandPreciousSeptember 26, 2012 at 10:58 AM

    What a shocking and awful experience for you. Thank you for speaking out - I'm sure it will help someone. The thing that concerns me the most about any kind of modern female contraception is the lack of longterm studies done about their affects. I'm sure many women find benefits to whatever form they choose, but I can't go back to pills or devices. I'm using natural methods until someone can give me a guarantee of safety on other options. Really feeling for you Bianca. Hope things return to normal soon.

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  3. Bianca, I hope this eases up soon. I have always been too scared to use such things because of the side effects they can have. Thank-you for posting this and you are right - there is a real lack of information out there.

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  4. Debbie van der SchyffSeptember 26, 2012 at 11:03 AM

    Very similar experience, have emailed you- I am a bit shy!

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  5. I was going to get one but the way the doctor gushed about it turned me off. Nothing is ever as good as it sounds and I am hearing more and more stories like yours. Thank you for being so honest in sharing your story, unfortunately it would seem you are not alone in your experience.

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  6. Bianca this is so awful! I had a bad reaction to an IUD device years ago (as you describe, weight gain, mood swings and for me very heavy periods and nasty cramps) and do remember some bleeding when it was removed - but nothing like what you're describing. With such heavy bleeding please look after yourself - plenty of iron and keep your fluids up. I hope you start to feel better soon. Lots of love xx

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  7. Thank you do much for sharing this. I was considering getting one as I've had issues with the pill, and then Implanon. Ladies don't do Implanon unless you want to stack on weight.

    Thanks. I hope this changes soon for you, you poor thing. Brave post, most appreciated. Xxxx

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  8. Jess @ myheartisyourhomeSeptember 26, 2012 at 12:25 PM

    Good on you for speaking out about this! There just isnt enough information about these things or about the things that can go wrong! I havent even looked into the mirena as an option and I dont think I ever would. When I was a teenager I have an "implanon" put it and my experience was somewhat similar to this.


    Yes it worked as a form of contraception, because it made me bleed for over two weeks, every two weeks. And they were heavy. And they were painful. And my mood changed. And I came down with depression. It was the most awful thing I have ever put my poor body through!


    I hope this backs off for you very soon and you can go back to living a normal life
    xx

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  9. Thank you so much for sharing. As a migraine sufferer, my options for birth control are very limited. I felt very wishy-washy about Mirena even though two doctors have recommended it. I never went through with getting it and after reading this I'm glad I went with my gut. I hope you feel better soon!

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  10. Oh beautiful lady, what a horrible experience. I have had that experience when you urgently need to find the loo and a change of clothes, not nice. I had mirena for about 6 mths and it was horrible, I couldn't wait to have it out again. Period for the whole time, feeling awful and the nurse who took it out pretty much said that I didn't give it long enough to feel the benefits.


    thanks so much for sharing your experience, i hope it eases soon...exx

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  11. Wow, what a nightmare for you. It appears to be luck of the draw. I've had a Mirena for about 18 months, and experienced absolutely no problems.IT's been rterrific, actiually - no period (doesn't stop the PMS, though). I'd had several friends who had one before making the decision...some swore it had dramtically changed their lives for the better, and a couple had it removed pretty quickly. I went in figuring I'd be in one group or the other...luckily, so far so good. HOpe things improve for you soon

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  12. I'm scared to have mine removed too now!!! Aarghhh. I've given mine 18 months to 'settle down'. I still get my period every 2 weeks. I've never had pmt so bad in my life and it just sucks but it was so painful getting put in I haven't been game to get it out.

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  13. Ok, I had mine out a month ago. My chin zits cleared up over night and I became less of a bitch. Apparently.


    But Holy Sweet Tampon! I am in your situation right now. Worst ever.... I am glad i did not have to leave the house much today. You are not alone Bianca. This sucks big time xx

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  14. Not related to Mirena but this -

    "I am now on Day 10 of the most horrendous blood loss I have ever
    experienced. Blood clots the size of golf balls have become a regular
    occurrence"

    is a regularly MONTHLY occurrence for me and has been for years. It doesn't get easier and every month I dread it. I feel your pain. Hope it ends soon for you x

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  15. You poor thing! I've had the bleeding issues exactly as they describe, but not from the mirena. I get that for the first 3 days of every single period. I literally can go through 5 super tampons *and* the same number of Maternity overnight pads in an hour or so. It's horrendous, isn't it? So draining.

    I'm horrified that the mirena has done this to you! Thank you for writing about it. My SIL went on the Mirena a couple of years ago and for about 8 months, she was a nightmare! Her mood swings were vicious and she couldn't stand it herself. It was hard for those around her, so I can only imagine how terrible it felt for her.

    I hope this stops. At this point, after bleeding for his long, is it worth hopping up to the ED?

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  16. Mine too, Rach. Mostly just for the first 3-4 days. But it is a given in our home that for those days I cannot leave the house, not for anything.

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  17. Had never heard of the Mirenia. But I am happy to read your post. Not happy to read about your pain and discomfort, but happy to find someone brave enough to speak out. Why is it that women try to keep all of this secret? Why don't we learn to speak out and educate each other?


    http://iliska-dreams.blogspot.com.au/

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  18. Yep - bleeding like a stuck pig is the terminology used in my household. Not from Mirena, but first 3 days WITHOUT FAIL. Where are the super plus plus plus tampons, someone needs to get on that quick smart. Oh. And I'm a teacher, no wandering off every 30 mins to change whilst the class runs mock. Whole situation never fails to shit me to tears....

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  19. I just asked Twitter about this, and I was directed here. Sounds HIDEOUS. I am considering it to combat the mood swings and the horrendously heavy periods which sometimes dont let me go to work. I guess its different for everyone, who knows how an individual will react? A friend of mine had one and said it was the best thing ever. For about a year I was on 8 weekly depo provera injections combined with the microgyn mini pill and not only did it stop the periods but it stopped the mood swings as well and I felt the best I have ever felt, unfortunately the side effect of terrible expense and bone thinning long term has stopped this continuing. I am now very cautious about the mirena, thanks very much for this information, its good that you have spoken about it. xxxxx Can I ask, did you get it put in for birth control or to stop the side effects of your period? just interested...

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  20. That's the reason I got mine IN! Now I'm keeping it - forever. Too scared to get it out. You poor thing. It seems that always happens with contraceptives - they work ok for 70% or so, so they don't worry about investigating the adverse effects that the other 30% of women have, which are often horrendous. I hope it stops for you soon. In the meantime, go and eat a steak, or three ….

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  21. I am one of the lucky ones - I rarely have more than a few spots. - I got a light period when it was first put in, and that is it. I had one put in after my second child. When we decided to have number 3 it came out and I was pregnant 2 months later. I got another one put in during the 6 week post baby check up. Love it. Hubby says my moods are more stable

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  22. Oh my goodness. Please update us and tell us if you are ok. My doctor has recommended the mirena to me on several occasions. I don't like to use hormonal contraception, and I don't like to have things implanted within my body, so i have said no each time. It's a difficult thing contraception. I say bring on the vasectomy!

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  23. I came to swoon over Ridge - but got distracted. My Mirena and I did not get along and after about 10 months mine actually came out on its own accord engulfed in an almighty clot. I felt instantly revived and not so blarrrrhhh. The crappy side of the whole Mirena project was that it has taken nearly 1/2 of my hair away. I have two bald spots about 7 cm each on the back of my head - they nearly touch! My once thick hair is now thin and it keeps on falling out and no one will tell me its from the Mirena but I think I am convinced. Had another friend who did IVF and the Mirena - just like me and she also suffered from alopecia. I wish I had done some more research before I had it put in - but was offered as the best option instead of a hysterectomy. Live and learn :)

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  24. I too had Implanon inserted a few years ago, it worked OK while it was in place. I did put on a stack of weight though...and the headaches...wow! After it was removed was a different story. Endometriosis took over my life, I would bleed 3 weeks out of 4, seemingly uncontrollable bleeding, and shocking pain. I was incapacitated for weeks at a time, unable to leave the house. In the end I had a hysterectomy, best thing i ever did, even though i was only 36. I can't blame the Implanon...but these problems didn't exist until it was inserted. Not enough is known about these devices and drugs and their long term effects.

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  25. OMG!!! so you're saying that this has happened to you. as we speak its happening to me. Ive called OBGYN and he tells me this normal. I cant enjoy and outing for no more than 30 min. And I work Hospice! so therefore I drive where ever I go, sometimes it takes me more than 30mins to get where im going and I find embarrassing to show up at a patients home with messy pants!!! :'( I feel like this has been a NIGHTMARE. and that the bleeding will never stop here it April 6. Its spring time; the birds are chirping and the smell of wonderful cut grass is in the air, And here I am shutting myself from the world because of this issue! what upsets me the most is that no one warned me about this, no one has any answers. Yes, as well as you... I thought "maybe i would have heavy bleeding" but not like this!. I bled a couple days after I had Mirena removed and it stopped the next month I had no bleeding. then just like a ton of bricks. I bled for 3 Weeks straight . horrible cramps where i was in the feta position. emotions running ramp-id! so high then it eased up I was starting to think that maybe there was hope. It wasn't even a week later. it all came back. but this time clots so big if i were to have weak stomach i would have passed out. I get that my body is probably trying to figure everything out where when I was on Mirena I seldom had periods and If I did it was light spotting to the full blown out massacre. IM OVER IT!!! I just think something would give! Does it lighten up?? I absolutely feel so blahh right now. HEELLLPPP!! I need all the support I can get my hubby is doing such a great job by supporting me but my 6 year old just doesn't understand why mommy is happy one min and crying the next! Im so happy I found someone that can relate to me!! but terrible circumstance. please posting i want to know how you handle/deal with this issue. thanks so much for listen to me gripe. I feel a bit of relief

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  26. I had my Mirena removed three days ago after experiencing, bloating, weight gain, mood swings, depression, and headches. Today I had a shower and thought gosh I am bleeding abit, got out dressed ready to go out for lunch... walked into lounge, huge wave of dizziness, went to toilet gushed absolutely gushed blood everywhere, followed by a massive blood clot. I have not felt this way before. To all suffering from the side effects of Mirena, I truly hope you all recover quickly and well.

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  27. Oh please tell me it will end? I had mine put in in September, have had spotting almost since then, plus long periods, that although not as heavy as pre Mirena, still happened when I was expecting the Utopia of NO BLEED. Ugh, had a shocking front cramp while grocery shopping on Wednesday this week, then massive clots and bright red gushing blood loss. Went to Dr, had an internal and an X-ray, looks like my body spat it out in one of those clots. It is Sunday night, and the clots and gushing are still happening. Please tell me what to expect next?

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  28. Oh you bled heavy for TEN days?!? That just makes me want to cry. Poor you. Poor me. Thank goodness it is gone. Hopefully things will improve for me, too. Do you have any lasting effects?

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  29. It was GROSS. Not sure if lasting effects - pimples worse now and I'm yet to lose the weight I put on. But I feel a whole lot happier. I really hope things settle down for you soon. Please let me know how it all goes xx

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  30. I do feel happier, relieved it is gone, but this gushing chunky bleeding is ridiculous, where is it all coming from?! I do hope the pimples and weight disappears too. Gosh, the thought these effects won't disappear is just too horrible to contemplate.

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  31. I have always taken care of my body both inside and out with great
    eating habits and exercise. Happy-go-lucky personality. Prior to the
    mirena I researched its side effects. Since having it (3yrs) I have
    gained 30+ all over and lost my healthy head of hair. I have been
    fighting to keep my happy personality. I had it removed in April 2013.
    My doctor said my loss of hair was due to hormones. Women have great
    intuition. That day it spoke LOUD and clear. I disagreed with him and
    told him i wanted out anyway. I have had very heavy periods; if that's
    what you want to call it. It is though the blood has been released from
    prison...a major exodus here; non stop. 2 weeks non stop then a few days
    of a break and its back; heavy. Its hard for me to exercise cardio
    wise, but i do get my weights in. I drink plenty of alkaline (lemon)
    water. 3 years of no menstruation and now the membrane is being flushed
    out so i do eat well to balance it all. I am still bloated and do feel
    as though I am smaller in size just a bit. I am giving my body, mind
    & spirit about 5-6 months to get back into normalcy. THANK GOD FOR
    BLOGS :)

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  32. Jesus being a woman really does have it crappy sides. I have just read this blog whilst in traffic, did I mention in sitting on a plastic bag and have half a roll of tp in my underwear just to make it home. I too had my mirena removed 4 weeks ago and am feeling the wrath more now than previous days. I had 2 ovarian cysts and many other side effects thanks to mirena. So thanks for your post. I am not alone

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  33. Oh you poor love. 4 weeks ago? Have you had the heavy bleeding for 4 weeks, or Is this your first period? I had mine removed just over a week ago, (only in for 6mths, and I expelled it) stopped bleeding heavily on Wednesday, and stopped totally yesterday (Sunday) but its back again lightly today. I've gone straight on the pill, and my Dr said to have two periods before skipping them. I am so worried about what they are going to be like. No you are not alone. X

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  34. Totes agree, thank goodness I found this Blog.

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  36. So at the moment I am extremely freaked out and scared about whatever is happening, which led me to surfing the web for answers and coming across this article right now. I am having the EXACT symptoms you listed, from the gushing to the extreme clots and all......BUT mine is still currently in right now, I got it a little over a month ago and had the regular spotting etc., but starting today the crazy stuff began and I don't know what to do. Did you ever find out exactly what caused that for you? And is there any possibility that can be the same cause for what's happening to me now, despite my IUD is still being in? If anyone has any answers please let me know. I'm debating going to the emergency room now and seeing if they will take it out for me :-/
    Shannon

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  37. So at the moment I am extremely freaked out and scared about whatever is happening, which led me to surfing the web for answers and coming across this article right now. I am having the EXACT symptoms you listed, from the gushing to the extreme clots and all......BUT mine is still currently in right now, I got it a little over a month ago and had the regular spotting etc., but starting today the crazy stuff began and I don't know what to do. Did you ever find out exactly what caused that for you? And is there any possibility that can be the same cause for what's happening to me now, despite my IUD is still being in? If anyone has any answers please let me know. I'm debating going to the emergency room now and seeing if they will take it out for me :-/
    Shannon

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  38. I am not a doctor so can not give you medical advice, but I know someone else on here commented about the same thing that's happening to you and they got an ultrasound. It showed that she had bled the device out. Go to a doctor or the hospital. Best you get the answers, support you need asap. Take care. Please let me know how you go xx

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  39. I was having the exact same thing. I had mine removed thurs by my dr. She put me on antibiotics and had my hgb drawn. It had dropped to 11.2. Tankfully I take iron supplements or it would have been even lower. I'm still bleeding though and it's still fairly heavy.

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Thanks so much for your comments. I really love that you're taking the time to tell me what you think x

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